This is what Republicans try to demonize for political gain. Think about it.
“Death Panel” is an easy manipulation. Know why? Because death is FUCKING SCARY! For everyone involved – patient and family.
Know what else? Hospice care is FREE for Medicare and Medicaid patients. And it’s typically covered by private insurance at a high percentage (and realistically, if you qualify for hospice care, you’ve likely already met your deductible).
Here are some (American) hospice facts:
– hospice care is for anyone who receives a prognosis of six months of life or fewer.
– hospice care isn’t just for cancer or dementia patients. Any life-ending diagnosis qualifies for hospice care.
– hospice care isn’t just for elderly. Again, anyone who has a life expectancy of six months or fewer should quality for hospice care.
– every licensed hospice provider is required by federal law to use a team approach. The team includes the medical director (who is an MD), nurses (RNs and LPNs), CNAs, social workers (MSWs), chaplains, and volunteers. These people are death experts.
– the RN case managers see everything. EVERYTHING. Every imaginable living condition, every insane family dynamic, and every conceivable physical condition. They know wounds. They know symptoms. They know pain. Can’t poop? Ask a hospice nurse. I guarantee they’ll have a dozen recommendations, including their own secret recipe for a “brown bomb” or “crappuccino” or “loosey goosey”. They all taste like garbage, but YOU WILL POOP!
– hospice CNAs are maybe the most gentle people on the planet. They care for a patient like they’re caring for their own grandparent. They’ll wipe your butt and wash your armpits. They’ll hold your hand and cry with you. They’ll sing to you or paint your nails or trim your ear hair and they’ll do all of it without an ounce of judgement.
– hospice social workers know death. Lots of families hear social worker and think family drama. That’s not what hospice social workers do. (Though they do that too, when necessary.) They help with anything not directly medical. Moving the patient from the hospital to home? The social worker can help with logistics. Questions about money? The social worker probably knows, or knows where to send you for answers. Need help with a living will or DNR? Ask the social worker. Terrified about what the final moments might be like? The social worker can walk you through what to expect.
– a patient or family can choose hospice care at any point, whether immediately after receiving a diagnosis or within hours of death. Obviously, the longer the hospice team is involved, the better they can guide the patient and family along the journey.
– hospice care can be revoked at any time, should the patient or family choose to seek active treatment or discontinue the care. Hospice care can be reinstated as well – it’s typically just a matter of paperwork.
– here’s what Medicare and Medicaid cover for free
the team home visits (home is considered wherever the patient currently lives, whether it’s the hospital, a long-term care facility, or their actual family home)
the medications needed to treat the symptoms of the qualifying diagnosis, plus the pain management meds and anything else the medical director prescribes
supplies – bed pads, diapers, gloves, bandages, etc
equipment – hospital bed, oxygen, lifts, etc
room and board isn’t covered if a patient is in a facility – that cost falls to the family.
Choosing hospice care isn’t giving up. It isn’t a death panel. It isn’t euthanasia. Choosing hospice care is acknowledging the reality that time is limited and that the patient deserves expert, specialized end-of-life care.
Hospice care is a choice. It’s not that surprising that Republicans are anti-choice.
‘The grave of the Russian composer Alfred Schnittke in Novodevichye Cemetery in Moscow is surmounted by a stone on which is engraved a rest beneath a fermata with a triple forte noted at the bottom: A very, very loud extended silence.’
– John Biguenet, Silence (London: Bloomsbury, 2015), p.49.
Hairdresser: We’re going to have to use a color remover to take out the blue pigment, then apply more pigment to allow for the proteins in the hair to adhere to it. Then possibly mix three different types of toners to reach the goal of your natural hair color.
Hairdresser: pretty simple
Me: this is chemistry
Hairdresser: yeah, but people don’t like when we talk that way
Hairdresser: so you’re a mortician?
Me: apprentice
Hairdresser: do you know why formaldehyde is used in clothing?
Me: I didn’t know that was a thing
Hairdresser: I think it’s due to the preserving qualities? But I don’t think that’s right.
Me: It’s not just a preservative, it’s also a disinfectant ‘cause it destroys bacteria as well as their food supply. It’s also a dehydrator.
Hairdresser: why not just use alcohol?
Me: good question. Formaldehyde is super cheap, so probably to cut costs
Hairdresser: is it really a carcinogen?
Me: yeah, I’m going to have so much cancer
Hairdresser: so you’re going natural to work at a funeral home?
Me: yeah
Hairdresser: while still in school?
Me: well we work in the funeral homes so we have uuuuh … experience with cases
Hairdresser: you can just say bodies it’s fine
Me: oh thank god
Five Minutes Later
Me: yeah so we don’t do autopsies it’s one of my pet peeves
Hairdresser: what if someone wakes up while you’re embalming them?
Me: there’s a huge difference between a living body and a dead one
second hairdresser: I think we should add more toner, but yeah I think rigor mortis would make it pretty obvious
Me: that and being in a fridge for a few days you will be dead by the time you get to us
Hairdresser: I think pumping them full of a carcinogen would help with that